News

WHAT’S HAPPENING IN HARROW?

Harrow Parents 4 Disabled Children (HP4DC) is now simply called Harrow Parent Forum (HPF).

In 2017, we started an outreach programme into mainstream schools because we wanted more parents of children and young people in mainstream schools to be more represented in the forum. Both parents,  SENCOs and Inclusion Officers told us that our name did not represent the majority of children and young people in their schools. We listened and discussed the issue with many parents and professionals from different schools and came up with a name that was simple and acceptable to everyone. We consulted a focus group to discuss the options and asked them to vote. We will now be known as Harrow Parent Forum and we will move to our new website address www.harrowparentforum.org by mid April.

Please get in touch if you have any further comments about the new name at info@harrowparents4disabledchildren.org 

MEET YOUR HARROW PARENT CHAMPIONS!

Find out what is a Parent Champion, and what they do. Discover how you can become a Parent Champion and use your new knowledge and skills as a stepping stone into your next job or career!

Click here for more details: https://www.harrowparents4disabledchildren.org/parent-champions/ 

HAVE YOU HEARD ABOUT THE NEW HEALTH APP FOR HARROW? DOWNLOAD IT NOW AT HTTP://HARROW.HEALTHHELPNOW.NHS.UK/

WHAT’S HAPPENING IN LONDON?

Visit our London Hub website for news and information on SEND elsewhere:

Click here for more details: https://www.specialneedscommunity.co.uk/news/

NEW ADULT HEALTH PASSPORTS

Harrow Mencap are having another Health Passport workshop for people with learning disabilities and additional needs on 18th of February. The drop in session is at Cedars Youth and Community Centre from 10am-12pm. Please contact Jordan Creed for more information on 07496494379.

This is part of their Treat Me Well campaign to tackle the issue of people with learning disabilities having much shorter life expectancies than people without learning disabilities. On average the lives of people with learning disabilities are 20 years shorter than people without learning disabilities. One of the main reasons for this is that people with learning disabilities are unable to access healthcare. Communication difficulties are a major reason for this, which is why we have been campaigning for health passports.

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Hilview Playscheme for 4-9 year olds

Playscheme application pack 2019 Playscheme poster

Playscheme application pack 2019

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NEW 5-Bed inpatient LD service needs parents views

Natasha Harmsworth-Blyth, a project manager at CAMHS Learning Disability Service is looking for a group of parents who would like to join a focus group to help develop this new LD unit. They are in the process of setting up a new 5-bed inpatient LD service, based in Kingsbury (the Kingswood Centre) which will provide assessment and treatment for 13-18-year-olds in London boroughs. Natasha is asking for parents and or service users to join their focus group which will be asked for advice and ideas on how this new service can ensure it meets the needs of its patients and carers, and the keep them involved in the processes. SHE would like to arrange a meet up in January who is interested so that she can explain a bit more about the project. If you had any experience in your young person been admitted into a unit like this before and would like to help improve the experience for other families or offer your expertise we welcome your views. Please either contacts us or Natasha Harmsworth-Blyth directly by calling 0203 317 2969 or emailing natashaharmsworth-blyth@nhs.net. Please read more about the project and its the location.

 

DOWNLOAD THE FILE HERE.

DOWNLOAD THE FILE HERE.

COMING SOON: HARROW SHORT BREAKS DIRECTORY!

Based on the feedback parents gave at the SEND Information Day (November 2108) to professionals about the information available on Short breaks providers, the council and the providers are working together with HP4DC to design a Short Breaks Directory booklet. We are working together to make sure it is available in downloadable PDF format and in printed copies.

This is a great example of how your views are important in helping us to continue to make change happen. Watch this space for more information soon.

Maria Luscombe – Head of Therapeutic Services gave a presentation, download it here:

Community Child Health Services – LNWHT Harrow nov 2018 (1)

NEW TO HARROW-Special Needs Discount Card-

The Max Card

We are pleased to announce that we have registered to become the distributor for the Max Card for Harrow. The Max Card is a national discount card especially for children with SEN and disabilities age 0-25. The scheme enables families to visit over 800 attractions nationwide at a discounted rate, including exciting venues like Alton Towers and Legoland. It will only cost £3.00 (plus £1.50p for postage and packing) and lasts for 2 years until you renew it. The Max Card will be in the name of the child or young person. You will be able to apply directly to us to purchase your card, online or in person. Find out more about who can apply for the card and order your own, click here

Updated SEND Local Offer Services Map

We are continuing to work with various professionals to develop the SEND Local Offer Services Map to make it easier for everyone- families and professionals, find information on the services available locally.  Its a ‘birds-eye’ view of the main services and with one click on the enlarged map it will take you straight the service or organisation you need on the main Local Offer website. Parents at the SEND Information day told us they would like phone numbers too so that they can also speak to someone. We have worked hard to include essential phone numbers for important departments or helplines.  The map is available as a downloadable PDF which can also be printed on an A4 printer. Please help us to continue to improve it into a tool that makes everyone’s life easier by sending us an email. Visit https://www.sendlocaloffer.org/harrow/ 

DISCOVER THE NEW LIST OF SHORT BREAKS PROVIDERS.

The provision of short breaks through a framework enables children and young people with disabilities to access to a variety of fun and exciting activities whilst providing their parent/carer with a break from caring so that they can spend more time with other family members, pursue their own interests both educationally and socially or just provide them with time to relax.

After consultation with parents/carers and children and young people, a competitive tendering process took place and 8 providers delivering a variety of activities have been awarded a contract to be part of the Short Breaks Framework until 30th June 2022.  The providers are:

Specialist group-based play and leisure activities

  • DARE
  • Harrow Mencap
  • Norwood
  • Kids Can Achieve

Community-Based Provision

  • CF Support Services Ltd
  • DARE
  • KIDS
  • Sense
  • Surecare Harrow and Watford
  • Kids Can Achieve

More details of the activities available and information on short breaks can be found on www.harrow.gov.uk/shortbreaks

The Harrow Learning Disability Health and Social Care Focus Group were set up to represent all ages.

This Focus Group, which is working on behalf of all individuals of all ages with a learning disability and their carers living in Harrow, held it’s first meeting on July 25th 2018 at Harrow Clinical Commissioning Group ( Harrow CCG)  Headquarters. This is an official Group which has been fully supported by the Harrow Health and Well-Being Board. It is represented by individuals with a learning disability and their carers, Harrow CCG, the Local Authority, and Local Health Trusts, who are joining together to identify health and social care issues thereby promoting solutions and action plans. It is also an opportunity to share information about any changes or future developments in Health and Social Care Services.

More information to follow soon.

Find out about our vision for inclusive and accessible play areas in Harrow HERE: Help us build the DREAM!